Scarlett's getting bigger, I'm getting smaller...

Today was a clinic day. I lost weight, and gained some pretty awful joint pain. Over the past week or so, my hands and ankles are in terrible pain, at times being frozen with swelling and pain. The explanation I got for this was that sometimes people with CF when they have a lung infection experience arthritis. I have experienced this before, but never enough to do anything about it. The pain was usually in one finger of the left hand and I never really thought about it. Recently I have been noticing more and more swelling in my hands. A few nights ago I could not open or close my hands, I have in a great deal of pain.

I have some pain killers and anti inflammatory drugs for my hands, and these help the symptoms. I have also been able to do extra physio and masks to allow me to breathe better, since I have had a pretty rough go during the last few days. Things seem to be stable again. But I certainly see that things can get much worse within a day or two, and my breathing gets frighteningly shallow and panicked.

Today I also had to go to TGH and do my final blood work. The vaccines are all done, and looks like those results should be in soon. Once they are, I'll get an appointment with a surgeon and get listed. Phew, that's all I want right now, to get listed. The pain, from my lungs, my back and my joints is getting to be too much for me, and I am ready to say goodbye to these lungs.