Today was another great day. I have been put on steroids to help these tight chest episodes that I had last week, and though I do not love being on steroids, I should get used to the idea going into transplant. So I don't mind. The good news, I am eating. Food has taste again!! It's amazing!! I have not eaten normally for months and months, and today I ate cheese bread for lunch and it tasted so good!! (you can tell it's the steroids when I am excited about cheese bread....) The point is, when you eat, you gain weight, and I would love to gain a bit before I go in to the OR. The faster the recovery will be on the other end.
The other great, in fact AMAZING news is that we got the CBC story. I hope I am allowed to talk about it, oh well, I'm talking about it. I am so excited. It will be 3 segments, 3 nights, about 4 minutes each, which in prime time is a big chunk of TV they say, about my story and that of my family! It's beyond what we could ever ask for !! And the CBC? We love the CBC!! They will interview me here Thursday for 3 hours. And then go to my house and interview my mom and Scarlett (who will have lots to say!! haha) and Martin, John and my dad. The show is about people that overcome great obstacles in life. They will talk about my eagerness to get past this, continue my life as a mom and wife, and my goals of wanting to play tennis and seriously get into running after I get my new lungs. The cool part is that they will also be there for when I go into the OR, and later post transplant as I am 'living my dream'.
As well as the CBC, a Toronto newspaper will be running a story about organ donation and my situation sometime soon. I am being interviewed for that tomorrow. Very excited about that also! I will be sure to post a link to it here for many of your guys out there not from Toronto. It's all so cool, the word is getting out and will do so much, I have no doubt, for organ donation.
The producer and I spoke tonight on the phone, a really nice guy, and he told me how much my blog moved him. I am so amazed when people say that. I love it. It has given me, this blog, something to turn to when I seemed to have nothing else. I never ever thought that I would enjoy writing so much, I never really wrote before I started this blog. But it has this life of it's own now, and I think it's incredible. The support I get. The amazing people that have helped me find my way through all this. It has really been incredible. The praise is something that I don't always understand, but I love. It makes me feel useful, when at times I can't do so much physically. I feel like I touch people.
Again, today I am reminded, how quickly things change. I spoke about this in my Happiness 101 post, this just proves my point. From a week ago, from a few nights ago, things change. Today was another good day. What made it so good, is that I did not waste a second worrying about if tomorrow will be as good, since I know better, it might not. I just enjoyed it. I ate, and it was SO good. I enjoyed my daughter, and that was way better than eating! She was incredible to hold and kiss. I saw my mom, my brother, and my husband all in one day. And I spoke to my dad on the phone, and texted Angie, so I got everyone. I thought about the fact that in less than a month we will have another baby in the family. I cannot wait to meet her, my niece! I had a great nap, I kissed my husband, I got my favourite nurse tonight, her and I had GOOD laughs together, I used my day well. Not a minute today, however, did I worry.
My New Treatment: O to the 2
9 years ago
8 comments:
Wow a CBC interview, that's fantastic I can't wait to see it.
I'm so glad you had another good day today Natalia and I hope tomorrow is an even better day.
I must say that reading your blog brings me to tears at times and the strength you show just amazes me. How one person can endure so much is beyond me. If only people could see how much a cf patients goes through in their lifetime, I'm sure more people would sign their organ donation cards.
Hang in there Natalia, those lungs will be coming your way soon.
SOOOOOOO amazing!!!! Cant wait for it to air!! (dont forget to let us know when!!!
You DO touch people and this blog has been a true inspiration.
I am thinking of you daily and eagerly open each new post hoping 'today is the day'!!
Wonderful that you got to see everyone today. Your precious girl is absolutely beautiful!
Wow...you're gonna be a big tv star! How cool! I'm glad you'll be able to post links to the video as living in Ohio I won't see it on my tv.
You absolutely touch people with your story/blog. Whenever I get to feeling sorry for myself I remember you and the strength and courage you are showing as you wait for your lungs.
I am an organ donor, as are all my immediate family members. I know a lot of people who say they have no problem having their organs donated if something should happen to them...but they do not have their drivers licenses marked as such or any type of documentation to that fact. People need to know that they need those things in place because they can't count on other people knowing their wishes or following their wishes should something happen.
Hang in there, Natalia. You're such an inspiration.
Sounds like you had a great day, you should be proud of your advocacy work, all from your hospital bed - your little girl will be so proud of you when you tell her all about it.
I am so glad to read this news Nat! SO GLAD. Keep it up lady!
I remember all about when I had to take high doses of steroids. I ate everything and could never get full. I sent my Mom all over T.O. to statisfy my cravings! So eat up ladycakes.
Yes you are being useful and YES you are touching people! Thank you for all the powerful testimonies of your journey. I'm so touched by your declaration of the power of prayers you poured out from the depths of your pain and despair. Then, you wrote of the CBC reporting "It's beyond what we could ever ask for !!" That certainly echoed this scripture:
"Now to Him who is able to do immeasurably more than all we ask or imagine, according to His power that is at work within us, to Him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen." Ephesians 3: 20-21
I trust you and all your generations will continue to bring glory to the One whose power is within you!
Praying for you with His love,
Michal
Lake Forest Park WA
A good day sure does make a difference in the spirits. Seems the power of prayer is pretty strong.
I'm praying for you Nat, praying very very hard, and there is not a day that goes by that I don't think of you.
Thanks for just being you
Post a Comment