I did not want to post so soon, as I really want everyone to read my post about my friend Erika. Her story needs to be told. But I have some good news that I had to share with all of you out there....
TGH called, and I am being listed!!
When I saw the number on the phone, I knew it was them. I took a deep breath. It was the coordinator Michelle that was calling, I knew what she was calling about! She told me that they met yesterday, and talked it over with the whole tx team, and decided that I was a good candidate for tx (meaning they did not find anything to worry about in all those tests they did). If I was willing, they would proceed and get me on that list! Was I willing? Are you kidding? I am willing!!
So next week I meet the surgeon, sign some papers, get my pager, and let the journey begin. I am emotional today. For many reasons. A young woman passed away a day ago, leaving her young husband, her mom and dad and brother, and so many people that loved her. She left my heart empty but full. I remember her words to me, and I know that my wait for those new lungs will be triumphant. And I think my friend Erika will have something to do with that, as she watches over us.
Special, emotional, good day.
Posts
My New Treatment: O to the 2
9 years ago
6 comments:
WOOOOOOOHOOOOOOOOOO!!!!!!!
That is such fantastic news!!! Party time!!!!
xo
Mark
What a bittersweet day for you. Erika sounded like an amazing person, much like you. I'm sorry for you loss but also very happy. I think Erika would have loved to hear that you were listed for transplant. I'll be thinking of you every day.
My little boy has CF and I want to say I've been VERY inspired by your outlook on life and especially your candor about the disease and adult life. God bless and I hope you can get your transplant!
Wow Nat. It must just feel so surreal. Sneding you hugs my dear friend and looking forward to the day that your pager goes off. I will be thinking about you tomorrow and I cannot wait to see pictures. You so deserve a day of pure spoiling by your loved ones.
oxoxoxo
What a wonderful call!
HOORRAAYYYY!!!!!!!!! Dancing for you, celebrating, I'm so happy. I'm sorry I haven't had a chance to catch up sooner but I'm really very happy for you all!!!!!!!!
Post a Comment