Wednesday, December 16, 2009

Unprecedented Progress

Hi Everyone,
You’ll be happy to hear that Natalia is now fully defying all expectations and doctors have started to express astonishment at how well and quickly she’s recovering given the severity of her circumstances up until 3.5 weeks ago when she received her double lung transplant at the absolute 11th hour.

As of Monday she has now ‘semi-graduated’ via the next stage of Step Down where she's now on the 7th floor of Toronto General Hospital vs. the 10th - no more multiple hook-ups to monitor her vitals, tracheostomy tube has been completely removed so she’s breathing on her own and able to speak consistently, all of her staples from surgery have now been removed, her drainage tubes are long gone, she is walking around the wing of the hospital an entire lap at a time, her burning desire to start eating food again should be satiated in the next day or two when the green light to eat is given and the feeding tube is removed, and recent results from chest Xrays were described by one doctor as “beautiful”...they are completely clear and her new lungs are working superbly.

All of the good being said, in the last few days Nat has been in more post-operative pain than usual, around her ribcage and along her sides in particular (for the operation doctors had to literally cut her chest open, move her ribs apart, and then join them back together afterwards with titanium) which has required additional pain medication, and the immunosuppressive drugs that she’s on (and will be on for the rest of her life) are causing her hands to shake a lot right now as doctors adjust dosages to find the right combination that works most effectively for her. She has also had quite a bit of abdominal/stomach pain. But Natalia keeps these factors in context and sees them as small inconveniences when compared to the bigger picture of how far she's come and where she's working on going...: home.

As those of you who have been following Natalia’s journey over the last month or so in particular already well know, her will to recover and be home for baby Scarlett is an undeniable and unstoppable force. You’ll be happy to hear that as her strength continues to grow, so too does her will and resolve and determination to get better even faster. Her thoughts are on Scarlett always. A small example to illustrate her mindset: when a doctor was visiting with her on Monday and exclaimed that Natalia is now recovering faster than most double lung transplant patients under the best of circumstances, her innate and natural reaction was to express surprise because she’s of the opinion that she’s just not healing fast enough. Typical Natalia fashion.

With all this talk of progress, many of you are likely beginning to wonder when Natalia will return to writing in her blog. Rest assured that it will be quite soon. There are several reasons why she hasn’t been able to just yet, first and foremost because her hands are shaking from her anti-rejection medications she has limited ability to type short messages via her BlackBerry and typing with a computer keyboard is proving particularly challenging. She’s also on heavy doses of pain medication (probably enough to knock out an elephant - Natalia is of course quite unphased but the meds do prevent clarity of thought at times). And lastly, there’s a bit more emotional healing that needs to take place for her. When she learns and thinks about what she's been through (fortunately she doesn't remember anything since her last day at St.Michael's Hospital just before being intubated and transferred to TGH) let alone what she is going to write about and where to start, it all becomes a bit overwhelming for her as I’m sure you understand and can appreciate. But she will be reaching out soon. A particularly meaningful and symbolic further step forward that will be indeed.

So. Lots of positives! And unprecedented progress. Feedback from doctors in the last few days about how far Natalia has truly come from how far gone she really was has further confirmed to us that not only has Natalia defied all the odds that had quickly stacked against her, she has pretty much transcended them. All of them. Every single one. She continues to amaze...and will be home with Martin and Scarlett and family soon.

Myles
ps: the photo below is Casa du Ritchie - with Christmas and Welcome-Home-Natalia Tree - Martin has it primed and raring to go...

15 comments:

Linda said...

Wonderful report this morning, Myles. Thank you so much for your detailed messages. Please tell Natalia we are all rooting for her in CF cyberland. Her determination is infectious and encouraging. The pix of the tree didn't come though, so hope you can resend it.

Linda in Louisiana

Anonymous said...

Awesome!!

Unknown said...

Natalia you are inspiring me to be more thsnkful for my life and health. Your story is one of such courage and love for your family and they for you. Have a blessed Christmas and the best 2010!

Brenda

Anonymous said...

Natalia, as happy as I am to hear all of this I remain unsurprised, as you are the strongest, most proactive person I have ever had the honour to meet. I'm so proud of you!

OceanDesert said...

YAYYY!!!!! Wonderful news!

GOOOoooooooooooooooo NAT!

GREAT pic!

Michal Ann said...

Myles, on behalf of Martin, Natalia and family, you've written another informative, sensitive post about some of the physical and emotional challenges. Please don't rush the blog writing.

I'm giving new respect to one of the "secret weapons" in this miraculous process: the prayers of baby Scarlett! She is praising God for all He has done, especially for her mommy's healing.

Psalm 8
O Lord, our Lord, your majestic name fills the earth! Your glory is higher than the heavens.

You have taught children and infants to tell of your strength,

silencing your enemies and all who oppose you.

When I look at the night sky and see the work of your fingers—the moon and the stars you set in place—

what are mere mortals that you should think about them, human beings that you should care for them? Yet you made them only a little lower than God and crowned them with glory and honor.

You gave them charge of everything you made, putting all things under their authority—the flocks and the herds and all the wild animals,
the birds in the sky, the fish in the sea, and everything that swims the ocean currents.

O Lord, our Lord, your majestic name fills the earth!

Merry Christmas is here!

Sarah Andrews said...

Hi Nat:

I always believed that you were going to get your lungs but I have to say, you had me incredibly worried there for a while. Am I surprised by your remarkable progress? Not really. I can understand your heart that motivates you. The heart of a mother who wastes NO time in getting it done! Bravo my friend.

You are still in the midst of it all so it's no wonder that it's hard to put it all into words. Your blog and all the bloggers will be here for you later when you want to write it out.

When I was sick I had some major hand shaking too from all of the meds and body trauma. It will rear it's head once and a while when I get nervous. It's all going to calm.

Take care of yourself Nat and get yourself home to Scarlett. Miss B and I love you lots.

Sarah

Taryn said...

Excellent report Myles, Natalia would be proud.
Natalia, you are certainly dfying all of the odds and expectations. This is totally amazing. I'm so happy and excited for you. Your dtermination is just inspiring. Soon enough you will be walking with Scarlett and have Martin in running shoes (or skis as the case may be) walking through the park. Keep on going girl! You are amazing!

jojo said...

Wonderful to hear everything is is going well for Natalia and family. Well done!

The Christmas tree looks amazing, Martin. I'm sure it felt bloody fantastic stringing up those lights.

Lots of love to you all - thanks for another great post, Myles.

x

Wewurtskihit said...

GO NAT GO!!! I cant wait to c u guys for the big party!!!!!!

NAT - write when u r READY! We can wait because we KNOW you will eventually write again!!! UNtil then be in the knowledge that Myles is doing a "relatively decent" job (LOL - he's doing amazing!!)) covering for you!!

xoxoxox
Mark

Anonymous said...

No stopping you now!!! Keep up the good fight! If that tree, a cozy house, a loving family and a happy baby aren't motivation than I don't know what is! :)

Poppy said...

It's so wonderful to hear about Natalia's forward progress. Getting home to her baby girl is powerful motivation!

I'm not at all surprised to hear that she is moving along more quickly than anticipated. She is one of the most determined people I have ever "met".

Please let Natalia know that we continue to send her our love, support and keep her in our prayers. Tell her not to worry about blogging. That should be way down on her list of things to worry about. We're here for the long haul...so when she's ready, we'll still be here.

Hugs to all of you and from our house to yours...Happy Holidays.

Heidi said...

Great news! I heard via Facebook you are having some stomach issues. Hopefully they will be resolved soon. I know the rejection meds are hard. I could hardly stop shaking in the beginning. It will get better! Love ya girl!

Julia said...

Natalia - you are amazing!!!

I know it must be so incredibly hard for you right now. Wanting so badly to be back home for the holidays and being in pain and getting adjusted to everything. I am thinking this is probably a very hard part of the journey for you both physically and emotionally. It will get better. You have so much unwaivering love and support surrounding you.

You have given your family a wonderful gift this Christmas. When things are rough - just breathe with those wonderful new lungs and imagine your beautiful tree full of lights waiting to welcome you home.

I continue to think of you and pray for you everyday.

Michal Ann said...

Always praying that you'll feel God's strength in body, mind, soul and spirit. Today is the darkest day of the year, but the bright lights of the season are overcoming the darkness because the Light of the world has come.

Isaiah 9: 1a-2

To Us a Child Is Born

Nevertheless, there will be no more gloom for those who were in distress....
The people walking in darkness have seen a great light;
on those living in the land of the shadow of death a light has dawned.