It is safe to say, that after all this time, I really really miss the outside world. A lot. As weeks pass, I seem to be more and more withdrawn fro the fact there out there, right out my window, is the outside world. A world that I really miss? Have I said that already?
So this Saturday is day 14 of this round of meds. They change them around after 14 days to mix things up. I have been on 2 rounds overall. So they are thinking of sending me home Monday. Well, as eager I am to go home, I am not quite sure that this is what I feel safe with. But the fact is, it's a bit of a double edged sward. I need to go home to see if I can be off the IV's, but I also don't want to go home since I really don't want to feel sick again and get even worse. After feeling stable for a bit, I really don't want to feel that pain again that I just seem to be rid of. The doctors wanted me to do my lung function today to see what it says, and only if it gets back to some sort of acceptable number can we think of going home. Well, I did my lung function this afternoon and it was pretty much the same. Slightly up, but were talking about such small numbers that it's really not much of a change. From 25% to 27%. Nothing to brag about.
So I don't know what will happen. May be another course of IV's. Which I am not happy about, but I am not happy about going home only to get more sick. I don't know.
On a completely different note, I have been at the house several times during this week and weekend. For an hour here and there to check on things. The nursery looks so good, it's awesome. The change is amazing, and it's still not quite done. But the furniture is all there and the registry gifts are arriving, so things are really coming along. I can imagine our little girl in that room, and it makes me smile. She will love it, especially as she gets older. It will suit her for many many years.
This will be a short post, as I am quite tired, and still don't know if I will be going home or not. So I will leave it here, and post today or tomorrow as to what's happening.
Oh! I nearly forgot, Beth is visiting me tomorrow!! Yes, as the hospital. I get to see her and the belly!!!! I get to see the BELLY!!!! I can't wait. I will be sure to take pictures.
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My New Treatment: O to the 2
9 years ago
9 comments:
I'm so glad Beth is coming to see you! I know that will lift your spirits so much!! I can't wait to see pics of the nursery too!
So, why can't you do Iv's at home, or are they just hesitant to release you because the current IV's might not be working? I hope and pray things get better soon!
Horray Beth is coming tommorrow! I hope you have a nice visit and baby does lots of kicks and wiggles for you.
Should definately lift your spirits...get some rest, tommorrow is a big day!
You are carrying a big load with you Nat. I wish that there was something that I could do to help ease it.
I think that it's awesome you get to see Beth and your bean. How fitting - you will be on your 100 day mark - last day in the triple digits. Enjoy my dear friend and tell Beth how awesome we all think that she is.
oxoxox
S I was thinking the same thing today. 100 days....
You bette take LOTS of belly pix!! LOL
It is always good to go home and be home, even for a few hours. Hopefully it will be for a few years soon!!!
You are always on our mind (isnt that a song?)
xox
Mark, Michelle and Tayleigh
PS: wow - double digits - what a milestone! Before you know it you will be a mom!! WOW!
I am thinking of you daily. It is so exciting that you get to see your baby belly today. I am excited for you. Take some pics and concentrate on getting well. I know how those hospital blues can get to you. We all know that feeling. Like Christy said, maybe you can go home on iv's soon. At least you could be in your own house, even though it still sucks to be on iv's, I am always so happy to go home on them. Praying things get better for you and quick.
Rebecca xoxo
Hey what's up Nat???!!!
That sucks that you don't feel that great and I'm certainly sad to hear that you may have to be stuck in the hole for a little while longer.
But as you know, if you don't feel well enough to really live in the "outside world", than you've got to do what you've got to do, to feel better. If that's more IV's than that's what it will have to be.
Could you get an exercise bike in your room and strap on your o2 and go to town. That might help you feel a little better and open up those lungs. Just a thought.
Thinking of you.
Ronnie
Thanks Ronnie.
I actually do have a bike, and get on it every day!!! As you said I just make sure to pump up the oxygen and I go for it. Part of this stay however, is excepting that it is time for trsplant, and that no matter how hard I work right now (and I workd hard!!) after so much time this way, it will not get better. This was a hard step for me. I have always worked hard and had results (as you are working and getting results now) but there comes a time when that no longer is the case. That fact alone kille me!! I am such a control freak!!
As of now, they are stopping my IV's tomorrow (sat) morning, and seeing if anything changes over the weekend. Then I am going to be dischanrged. I am concerned about it, but they want me to go home, and the information we get about how long I can be off IV's will also be important for the transplant team. If I need IV's all the time, then that tx will comes faster.
Part of me wants to stay here, parts of me wants to go home. Time will tell what happens this weekend!!!
xoxo
Can you do IV's at home?? Do you have a port/picc line??
I am praying you will be feeling better soon, and you will better numbers.
How exciting you get to see Beth!
Hang in there girl!!
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