Today was the first of the tx assessment tests. I had the TB skin test, bone density scan, ECG and some blood work. I have some more tomorrow, but so far they are the same tests that I've had done several times before as my yearly CF testing.
This has really made me excited! Something different for a change, something to focus on!!
Nothing else to report, but thought I would let the blog world know that it has begun, and I am really excited about it!!!! These days all I think about is our little girl. How she will look like, how her little toes will look....is her hair going to be straight like her daddy's or curly like her mommy's?! I also think about the way it will feel to have new lungs. Oh, that thought.....almost as good as having my little girl in my arms!!
With those beautiful thoughts, when they say the words 'this might hurt a bit' when they do another test, poke or prod, nothing does hurt. Hope is the best anesthetic!!
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My New Treatment: O to the 2
9 years ago
8 comments:
WOW..it is really happening! SO COOL!
Your spirit is really rubbing off on us! Thank you for that!!!
Mark
Heck yes!!!
Let the games begin!
Ronnie
That's great news!
Awesome!!! As crappy as it is being in the hospital, it's easy to get all the testing done! Hang in there and keep us posted.
Of course I will still make your beanies. I am just very discouraged with all the negative anonymous comments saying I am taking advantage of people asking for money. Some have said some very hurtful things. Good luck with all the tests.
Wow, it really seems to be moving along! I continue to pray for you all and you continue to be such a huge inspiration to me!!
You are such an inspiration to me. Thank you again for your uplifting post on my blog. You know better than anyone about making hard choices and really doing what's best for your body means. Thank you for reminding me of the spirit it takes to fight and that we need to keep pushing along with the best outlook possible for both our mental and physical well being.
Also, thank you for the suggestion for the soreness. And yes my mom is awesome, I would never have gotten this far without her. I believe you have the same kind of support and that right there puts us leaps ahead.
Hope your meetings are going well for the TX. I'm thinking of you and your family everyday, hoping that soon you'll have your new baby and healthy lungs -- both great gifts.
HI - I have been thinking about you and am in need of an update on how you are. That sunshine is getting warmer Nat - your baby girl is going to be here soon. So glad that your tx is in motion.
Hugs and love,
Sarah
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