Amazing things.

Today I was at my TGH clinic. Another super long day. It started off a little bumpy, literally!! When heading out this morning to the car, with my mom Scarlett in tow (since I can't drive yet, I have to rely on my mom with Scarlett to drive me) I fell on the road. I did not slip, there was no ice or snow. I just stepped off the curb and my knees just gave in. Ouch! I forget still that my knees and legs are so skinny and there is so little muscle! Yikes. It was not the nicest thing to have happen at that early in the morning, especially since I knew I had a long day ahead of tests. As far as I can tell all is okay, one sore and bruised knee.

So I had my PFT's first, followed by treadmill room (basically physio - treadmill, bike, weights, and legs....I have to continue until 3 months post-op) then blood work, xray, and finally clinic. My day started to my pft's, which are the tests that require the patient to breathe in to a machine and find out lung function. I know that not all my blog readers out there know all the CF and transplant lingo and tests, so I am going to explain as I go along. Anyhow, today we saw another incredible number. My new lung function is 76% (or 2.65L for those that follow those more accurate numbers).. I was in shock. About a week ago I was at 63%! My family and I are so happy, we're thrilled. It's all like a dream.



Clinic went really well. The doctors are thrilled with everything, and hope that it all keeps on track like this. My drug doses were changed, so that I am not on such high steroid doses, and that's always great news. My xray is pretty, clear, and when the doctor looked at it today, she was thrilled that after 2 months and all that I endured waiting for my lungs, they were able to achieve such positive results. I can tell from the staff, everyone in surprised. To be honest, I am too. I believe in science and medicine, but really it all just feels miraculous to me. From what was a bad dream, so just plainly a dream come true.



I am very tired, and am off to bed. Scarlett is long asleep, the good baby that she is. Mommy's little helper I think of her. Being to sweet as mommy goes to her clinics and tests - and it seems like she understands it all. That we need to stay strong together, not only her and I, but her daddy, and grandparents. Stay strong and keep going as we have being. Together, no matter what, how hard it got. And it got so hard, and now the clouds are parting, and 2010 has emerged, again like a dream.

Myslef and Martin with our little Scarlett - who loves to hold on to daddy's hair!!